Author Topic: The WELLNESS OUTREACH & SUPPORT Thread  (Read 75817 times)

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Jim and Dan

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #450 on: November 19, 2024, 12:34:50 PM »
Society seems really fake to me

It's not just you and you are correct, I struggle to find my place in this cesspool...

@h00man I hope things got better.

@lemonchicken91 I'm in the same boat, I can't seem to get out of the rut of the groundhog days of mundane, complacent "adulthood". I know what I should be doing, but things are holding me back from taking that leap...
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dstrytruitt

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #451 on: November 29, 2024, 02:10:08 PM »
Rough of time of year for many.
For me it’s the second holiday run without my dad who died April 2023. Miss him dearly. Miss him enjoying my children.
I’ve been skating with my youngest child lately; 9-year-old daughter has been digging learning to pump on our miniramp and skate a couple area parks with me over the last few weeks. Pretty stoked on the time with her.
I hope everyone here is taking it slow and being patient with themselves and others. Love to you all.

noxiousPond

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #452 on: January 01, 2025, 05:57:33 PM »
Society seems really fake to me

It is. And you realize it more and more the older you get.

I was going to post a new thread about this but wasn’t sure if it was justifiable so this seems like a good place to….

I am at a pretty low point in my life. Not happy with anything really. I am going to be 2 years sober from alcohol exactly tomorrow, other than that I hate my life currently. Sobering up was one of the best things I’ve done for myself but it unfortunately gave me a real hard reality check. Nearly 15 years of drinking almost every day to suppress all your problems then sobering up sure did it to me.

I’m 36, I have a job at Whole Foods for the past 10 years and I currently live with my father. In my twenties I moved out to LA but it didn’t work out and ever since I’ve been back (5 years now) it’s been so hard to get me motivated to do something with my life again. Two bad breakups also fucked me up as well.

I’ve basically realized I cannot work for any job or corporation that I don’t have a passion for. Currently the ONLY thing that genuinely makes me happy is skateboarding. Seriously. That’s it. When I’m skating I’m so fucking happy, especially with the local homies. Outside of my skate sessions it’s back to horrible depression

I’ve decided I want a job in the skateboarding industry. I seriously have never been so passionate about something in my entire life. I fucking adore this thing of wood with wheels. I’ve completely fallen in love with the culture and extremely supportive community, even the fashion. Everything. I don’t know why I haven’t been skating my whole life. Everything about it speaks to me so I want to make a career out of it. I’m not good, only been at it for a year and a half, but the passion is 100% there

I know the economy is shit and skateboarding is a very “don’t fake the funk” where respect is earned but how do I get in this industry?  I randomly thought about moving to Dayton Ohio because it’s a lot more affordable than Jersey if I can work for quasi? Maybe just at a warehouse gathering online orders? Anything to get my foot in the door. Would emailing skate companies be a bad idea?

I don’t want to step on anyone’s toes. I wanna earn the respect, make real friends in the community (which I’ve definitely started to) I just want to do this right. As hard as it may be.
quit beers. picked up a board. now I damage the outside of my body

JM

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #453 on: January 06, 2025, 02:47:00 PM »
Expand Quote
Society seems really fake to me
[close]

It is. And you realize it more and more the older you get.

I was going to post a new thread about this but wasn’t sure if it was justifiable so this seems like a good place to….

I am at a pretty low point in my life. Not happy with anything really. I am going to be 2 years sober from alcohol exactly tomorrow, other than that I hate my life currently. Sobering up was one of the best things I’ve done for myself but it unfortunately gave me a real hard reality check. Nearly 15 years of drinking almost every day to suppress all your problems then sobering up sure did it to me.

I’m 36, I have a job at Whole Foods for the past 10 years and I currently live with my father. In my twenties I moved out to LA but it didn’t work out and ever since I’ve been back (5 years now) it’s been so hard to get me motivated to do something with my life again. Two bad breakups also fucked me up as well.

I’ve basically realized I cannot work for any job or corporation that I don’t have a passion for. Currently the ONLY thing that genuinely makes me happy is skateboarding. Seriously. That’s it. When I’m skating I’m so fucking happy, especially with the local homies. Outside of my skate sessions it’s back to horrible depression

I’ve decided I want a job in the skateboarding industry. I seriously have never been so passionate about something in my entire life. I fucking adore this thing of wood with wheels. I’ve completely fallen in love with the culture and extremely supportive community, even the fashion. Everything. I don’t know why I haven’t been skating my whole life. Everything about it speaks to me so I want to make a career out of it. I’m not good, only been at it for a year and a half, but the passion is 100% there

I know the economy is shit and skateboarding is a very “don’t fake the funk” where respect is earned but how do I get in this industry?  I randomly thought about moving to Dayton Ohio because it’s a lot more affordable than Jersey if I can work for quasi? Maybe just at a warehouse gathering online orders? Anything to get my foot in the door. Would emailing skate companies be a bad idea?

I don’t want to step on anyone’s toes. I wanna earn the respect, make real friends in the community (which I’ve definitely started to) I just want to do this right. As hard as it may be.

Dammit  >:( I had typed out a long response to encourage you.  And then my browser froze, and it all disappeared.

The gist was go for it! Be genuine annd true to yourself, though. Also, keep mind open for skate-adjacent careers. Something where you work near skating or just make decent money enough to buy from your local shop or donate gently used gear (or new!) to kids that need it.

Skate adjacent like: business, graphic design, architecture, landscape architecture, civil engineering.

Those all require degrees so get started now! You never know what opportunities open up just staying near something you love.

Hope that made sense :/ want it to encourage you.
Thanks y’all. It’s been fun.

New Dog
✌️

noxiousPond

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #454 on: January 07, 2025, 10:12:24 AM »


Dammit  >:( I had typed out a long response to encourage you.  And then my browser froze, and it all disappeared.

The gist was go for it! Be genuine annd true to yourself, though. Also, keep mind open for skate-adjacent careers. Something where you work near skating or just make decent money enough to buy from your local shop or donate gently used gear (or new!) to kids that need it.

Skate adjacent like: business, graphic design, architecture, landscape architecture, civil engineering.

Those all require degrees so get started now! You never know what opportunities open up just staying near something you love.

Hope that made sense :/ want it to encourage you.

Thanks a lot I do appreciate. It’s ups and downs a lot. I’ve talked to skate shops around my area and one common thing they’ve told me is to become a familiar face. One shop mentioned being a sales rep for a shoe brand is a good idea.

But yes you’re absolutely right. Anything skate adjacent works for me to. Even a clothing brand that dabs in skateboarding works for me too.

I will admit I’ve always been awful in college and really don’t want to go that route since it’s also a money pit.
quit beers. picked up a board. now I damage the outside of my body

counter spell

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #455 on: January 08, 2025, 04:57:50 AM »
Expand Quote
Society seems really fake to me
[close]

It is. And you realize it more and more the older you get.

I was going to post a new thread about this but wasn’t sure if it was justifiable so this seems like a good place to….

I am at a pretty low point in my life. Not happy with anything really. I am going to be 2 years sober from alcohol exactly tomorrow, other than that I hate my life currently. Sobering up was one of the best things I’ve done for myself but it unfortunately gave me a real hard reality check. Nearly 15 years of drinking almost every day to suppress all your problems then sobering up sure did it to me.

I’m 36, I have a job at Whole Foods for the past 10 years and I currently live with my father. In my twenties I moved out to LA but it didn’t work out and ever since I’ve been back (5 years now) it’s been so hard to get me motivated to do something with my life again. Two bad breakups also fucked me up as well.

I’ve basically realized I cannot work for any job or corporation that I don’t have a passion for. Currently the ONLY thing that genuinely makes me happy is skateboarding. Seriously. That’s it. When I’m skating I’m so fucking happy, especially with the local homies. Outside of my skate sessions it’s back to horrible depression

I’ve decided I want a job in the skateboarding industry. I seriously have never been so passionate about something in my entire life. I fucking adore this thing of wood with wheels. I’ve completely fallen in love with the culture and extremely supportive community, even the fashion. Everything. I don’t know why I haven’t been skating my whole life. Everything about it speaks to me so I want to make a career out of it. I’m not good, only been at it for a year and a half, but the passion is 100% there

I know the economy is shit and skateboarding is a very “don’t fake the funk” where respect is earned but how do I get in this industry?  I randomly thought about moving to Dayton Ohio because it’s a lot more affordable than Jersey if I can work for quasi? Maybe just at a warehouse gathering online orders? Anything to get my foot in the door. Would emailing skate companies be a bad idea?

I don’t want to step on anyone’s toes. I wanna earn the respect, make real friends in the community (which I’ve definitely started to) I just want to do this right. As hard as it may be.

my best advice as someone your age with a similar background is to get a job as close to your interest as you can, this will make you instantly valuable to your future/dream employer. for example i dont work for a 'big' brand, but i do different kinds of printing/manufacturing, mostly self taught.

i spent 10+ years just doing this shit in my free time while i worked at shop rite and panera, and now i have a 'decent' job printing and making skate stuff for my local scene.

you don't have to work for quasi, kayo, etc. to have a job you're passionate about and do stuff in the skate world, it's a bit overrated and you may have much more fun being in control of what you make while you work an adjacent job that keeps your skills sharp and doesn't shove skate culture in your face 9-5 AND in your free time.

hope that made sense!

noxiousPond

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #456 on: January 08, 2025, 06:21:46 PM »
No it makes sense and that’s for the advice. I have a feeling it’s gonna be a retail esque job starting out. I never got a degree in anything that will actually get me anywhere and the only experience I have is retail…
quit beers. picked up a board. now I damage the outside of my body

Chavo

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #457 on: January 18, 2025, 10:33:52 AM »
Expand Quote
Society seems really fake to me
[close]

It is. And you realize it more and more the older you get.

I was going to post a new thread about this but wasn’t sure if it was justifiable so this seems like a good place to….

I am at a pretty low point in my life. Not happy with anything really. I am going to be 2 years sober from alcohol exactly tomorrow, other than that I hate my life currently. Sobering up was one of the best things I’ve done for myself but it unfortunately gave me a real hard reality check. Nearly 15 years of drinking almost every day to suppress all your problems then sobering up sure did it to me.

I’m 36, I have a job at Whole Foods for the past 10 years and I currently live with my father. In my twenties I moved out to LA but it didn’t work out and ever since I’ve been back (5 years now) it’s been so hard to get me motivated to do something with my life again. Two bad breakups also fucked me up as well.

I’ve basically realized I cannot work for any job or corporation that I don’t have a passion for. Currently the ONLY thing that genuinely makes me happy is skateboarding. Seriously. That’s it. When I’m skating I’m so fucking happy, especially with the local homies. Outside of my skate sessions it’s back to horrible depression

I’ve decided I want a job in the skateboarding industry. I seriously have never been so passionate about something in my entire life. I fucking adore this thing of wood with wheels. I’ve completely fallen in love with the culture and extremely supportive community, even the fashion. Everything. I don’t know why I haven’t been skating my whole life. Everything about it speaks to me so I want to make a career out of it. I’m not good, only been at it for a year and a half, but the passion is 100% there

I know the economy is shit and skateboarding is a very “don’t fake the funk” where respect is earned but how do I get in this industry?  I randomly thought about moving to Dayton Ohio because it’s a lot more affordable than Jersey if I can work for quasi? Maybe just at a warehouse gathering online orders? Anything to get my foot in the door. Would emailing skate companies be a bad idea?

I don’t want to step on anyone’s toes. I wanna earn the respect, make real friends in the community (which I’ve definitely started to) I just want to do this right. As hard as it may be.

If the act of skateboarding is the main thing that brings great joy in your life (a sentiment I agree with), working on the business side might make you even more depressed. Perhaps you can contribute in some other way: build spots, create videos, start a youtube channel. Don't do it for money and just see where it takes you.

Re benefits, every full time job I've ever had included at least basic medical and some sort of employer-contributed retirement plan. The tradeoff is that some of these paid much less than comparable jobs. It's difficult without a specific skill-set, but you can at least find something that isn't soul sucking.

Franksnose76

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #458 on: January 23, 2025, 10:28:58 AM »
Hey guys was kind of wondering if you all can help me out. So I think this a reoccurring issue and I am trying to stop this feeling or if not ground myself in the present moment.  Here it goes, so I feel as if when talking with homie or partner I'm super psyched on a project or an event I will bring it up and if it is met with reluctance or rejection/talking me out of it how do I handle the feeling of either being rejected or talked out of? As I'm reading this it's not conveying my thoughts as well as typing it out. I just feel like my ideas are either ignored or just nah I am not interested.

Jim and Dan

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #459 on: March 14, 2025, 08:11:47 AM »
I'm just all sorts of fucked up, I can't get it together and although stable, still live in a world of crisis and uncertainty, essentially drifting lost amongst the sea of life... I just can't take any of this seriously and the obsessive compulsion of ideation enters my thoughts as soon as anything becomes critical. I just don't know what to do anymore, should I just dispossess everything I have and worked for? Move to some kind of shack in the woods and live off the land until the day comes that I walk into the forest and never come back? Finally return to the Earth and let the animals and microorganisms continue the perpetual cycles of death and rebirth? I just don't know what to do anymore and it's partly my own doing, partly genetics and partly environment, some things were within my control and some weren't, with the parts that weren't sending me down a psychological path that is extremely difficult to find your way out of. I'm scared, scared all the time, of the unknowns, of how I can make it to tomorrow and what it holds. While decades of extensive therapy have helped at times, I feel trapped in my current situation and don't know if I have the strength to get out of it, it's very psychologically gripping and very co-dependent. The potential of having the things I love taken away from me has kept me here too long and I just find myself in a real bind. I fear the psychological issues will never subside, the obsession will never go away and just feel generally hopeless in regards to my actual self, feeling as if I wasn't built for this life. We keep these kind of things inside of us, maybe afraid of the taboo and stigma, maybe afraid to admit how bad it really is or not wanting to feel vulnerable, but I'm not one to really sugarcoat these kind of matters and don't mind speaking openly about the struggles that I have, even though I often don't feel worthy as there are people and populations in this world whose struggles make my own look extremely manageable. But I understand at the same time that we are all individuals with our own experiences and what may be hard for me might be easier for some and vice-versa.     

In regards to feelings of rejection and validation, I don't know the exact answer to that and suffer from similar reactionary feelings. Reframing the paradigm of reaction could potentially help or just going through with the task or project that you are seeking to accomplish regardless of the external validation. But that is a complicated situation with a complicated answer, as again, we are all unique to a degree. I've built my entire adult life around validation, so ultimately I'm probably not the best person to answer this, as the rejection by my mother and her choice to put her relationship with her partner above the welfare of her child and subsequently letting said partner abuse her child set my me down a long path of seeking validation from female figures in my life.
« Last Edit: March 14, 2025, 09:30:12 AM by Jim and Dan »
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Big Brother

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #460 on: April 19, 2025, 07:42:42 PM »
My DMs are open if anyone needs to chat. I have suffered from serious depression for most of my life. I am medicated and in therapy of course and things are better than ever. But that doesn't change having depression in a real way and having episodes. it never goes away so learning to live with it and curb it and work around it, rather than letting it break you, is essential.
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Shifty Flip

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #461 on: April 21, 2025, 03:29:15 AM »
I’m dieing.  Lupus and sarcoidosis.  2 ER visits this week. I fired my pcp, it was a tiny practice in her house. I hope I make it to the John’s Hopkins referrals next month. I tried to bomb the hill by my house to feel better and couldn’t.  I got pulled out of my car at a DOLLAR GENERAL of all places by the ambulance, they thought I was dead. I was asleep in my car for hours.  So embarrassing.  I’m living better than I have in my entire life and I’m falling apart. Just slept 17 hours straight.
Sorry for oversharing.
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botefdunn

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #462 on: April 21, 2025, 04:01:11 AM »
I’m dieing.  Lupus and sarcoidosis.  2 ER visits this week. I fired my pcp, it was a tiny practice in her house. I hope I make it to the John’s Hopkins referrals next month. I tried to bomb the hill by my house to feel better and couldn’t.  I got pulled out of my car at a DOLLAR GENERAL of all places by the ambulance, they thought I was dead. I was asleep in my car for hours.  So embarrassing.  I’m living better than I have in my entire life and I’m falling apart. Just slept 17 hours straight.
Sorry for oversharing.

Shifty, what the fuck. Taking what you are saying at face value, maybe you don't feel brave, but you are in my eyes. It sucks you couldn't bomb the hill, but it's rad that you want to. You're not oversharing, I wish I knew more. Maybe you already talked about it, how long have you been dealing with this, and did it just get more severe recently? Do you have family helping you deal with this? I probably wouldn't feel like answering these dumb questions if i were you, but my heart goes out to you, and I'm wondering about you. When's the last time you were able to skate?

Shifty Flip

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #463 on: April 21, 2025, 05:08:40 AM »
It just got bad. Turns out my family has a huge history, but allot of them think people are just weak.  I was an IV drug  user for 25? Years, methadone everything. I’m so clean now even off the clinic and I’m falling apart. I even won full custody of our 8 year old. It’s so backwards
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Jim and Dan

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #464 on: April 21, 2025, 01:20:56 PM »
It just got bad. Turns out my family has a huge history, but allot of them think people are just weak.  I was an IV drug  user for 25? Years, methadone everything. I’m so clean now even off the clinic and I’m falling apart. I even won full custody of our 8 year old. It’s so backwards

My thoughts are with you mate and I feel for your plight, life certainly never wants to seem to play fair...

In the same boat to a degree, a couple years after putting down the rig I got diagnosed with an autoimmune disorder that seems to be kicking the crap out of me, maybe not the extent that you are dealing with though, but pretty much depleting my energy to the point that it is difficult to do anything outside of my normal 7:00 am - 4:30 pm existence. Sometimes it feels like life just wants to shit in your proverbial cheerios as soon as you start doing better for yourself... Try to stay positive if possible, although I certainly understand that is easier said than done. 
Roll for Rusty, Frip, Dapple and Tate

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #465 on: April 21, 2025, 04:27:19 PM »
Expand Quote
It just got bad. Turns out my family has a huge history, but allot of them think people are just weak.  I was an IV drug  user for 25? Years, methadone everything. I’m so clean now even off the clinic and I’m falling apart. I even won full custody of our 8 year old. It’s so backwards
[close]

My thoughts are with you mate and I feel for your plight, life certainly never wants to seem to play fair...

In the same boat to a degree, a couple years after putting down the rig I got diagnosed with an autoimmune disorder that seems to be kicking the crap out of me, maybe not the extent that you are dealing with though, but pretty much depleting my energy to the point that it is difficult to do anything outside of my normal 7:00 am - 4:30 pm existence. Sometimes it feels like life just wants to shit in your proverbial cheerios as soon as you start doing better for yourself... Try to stay positive if possible, although I certainly understand that is easier said than done.

Last week I took my son to school, felt fine, drove to dollar general for ph water and parked to listen to last 2 mins of random skater of the week. Woke up being dragged out of the car 2 hours later by the ambulance. They were just happy I didn’t need narcan. The gurney lady punched the sky and said, he’s okay, we don’t need narcan.  But it’s scary. In all my days using that never happened to me. Not once.  The autoimmune is just crazy. I slept 17 hours straight yesterday.  Luckily I have good family, friends and neighbors close.  It’s just frustrating. I lost my union job 12/31. I’m buying a cane. I’m 48. Maybe I can wall ride like Lance with it soon. Life goals
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botefdunn

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #466 on: April 21, 2025, 04:53:39 PM »
It just got bad. Turns out my family has a huge history, but allot of them think people are just weak.  I was an IV drug  user for 25? Years, methadone everything. I’m so clean now even off the clinic and I’m falling apart. I even won full custody of our 8 year old. It’s so backwards

sounds like life is treating you like shit. Most people can't handle death and sickness, the temptation to offer advice is so strong, i think subconsciously we all want to think somehow we'll be smarter or something. Your kid is no doubt the best person you could have in your life, i'm glad for you at the same time as sorry. Odd request, but can we get a pic of the hill you want to bomb, or a description? Is this a hill you've gone down before or a blaze of glory type of thing?

Shifty Flip

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #467 on: April 21, 2025, 05:11:56 PM »
It is dark here right now. But my little town has a whole row of Hills. I’ve definitely bought this one before. I definitely ate it too. But flying on some ace classic that are super loose just makes everything better.
Photos tomorrow, or hopefully a video of the bomb.  I’m going to John’s Hopkins in a couple weeks. Things will get better
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Big Brother

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #468 on: April 22, 2025, 05:11:21 AM »
It is dark here right now. But my little town has a whole row of Hills. I’ve definitely bought this one before. I definitely ate it too. But flying on some ace classic that are super loose just makes everything better.
Photos tomorrow, or hopefully a video of the bomb.  I’m going to John’s Hopkins in a couple weeks. Things will get better

Horrible news. Sorry to hear. Best of luck to you with all this.
"no not never ... you should to"

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #469 on: April 23, 2025, 07:55:14 PM »
It is dark here right now. But my little town has a whole row of Hills. I’ve definitely bought this one before. I definitely ate it too. But flying on some ace classic that are super loose just makes everything better.
Photos tomorrow, or hopefully a video of the bomb.  I’m going to John’s Hopkins in a couple weeks. Things will get better

How are you doing?
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scab

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #470 on: April 23, 2025, 11:45:58 PM »
Things will get better

As a shifty flip you are one hundred percent guaranteed to get back to straight no matter what. You got this!

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #471 on: April 24, 2025, 12:44:45 PM »
Expand Quote
It is dark here right now. But my little town has a whole row of Hills. I’ve definitely bought this one before. I definitely ate it too. But flying on some ace classic that are super loose just makes everything better.
Photos tomorrow, or hopefully a video of the bomb.  I’m going to John’s Hopkins in a couple weeks. Things will get better
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How are you doing?
come on
Big time bad. Almost got the ambulance last night because I was coughing so much. It’s so nice outside all these vitamins. Gotta catch up sometime. I joined a group, and they taught me so much about lupus and sarcoidosis. It’ll go into remission. I just gotta keep taking care of myself. Healthy life. but I do have period where I literally think I’m gonna die. Scary life is too short.
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Shifty Flip

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #472 on: April 25, 2025, 04:57:39 PM »
So my cousin who has a lupus sarcoidosis real bad, added me to a support group. And she gave me like a Costco sized bottle of prednisone. But I was trying not to do anything without a doctor telling me too. I was just dying so I started taking it yesterday in the day and what a huge difference. I’ll tell my doctor on the seventh that I’ve been taking it. Gotta be honest. But I go out and walked today. No more fallen in busting my head up and getting out of bed. I’ve learned a lot. It’ll go into remission. I will be OK. I still want to cut my legs off even though I can’t feel them. I can’t feel my mouth but big progress with the breathing. Medical professionals don’t really know much about it.
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botefdunn

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #473 on: April 25, 2025, 07:10:00 PM »
So my cousin who has a lupus sarcoidosis real bad, added me to a support group. And she gave me like a Costco sized bottle of prednisone. But I was trying not to do anything without a doctor telling me too. I was just dying so I started taking it yesterday in the day and what a huge difference. I’ll tell my doctor on the seventh that I’ve been taking it. Gotta be honest. But I go out and walked today. No more fallen in busting my head up and getting out of bed. I’ve learned a lot. It’ll go into remission. I will be OK. I still want to cut my legs off even though I can’t feel them. I can’t feel my mouth but big progress with the breathing. Medical professionals don’t really know much about it.

Don't cut the legs off! you're gonna need those later. Really good to hear you are getting some relief.

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #474 on: April 26, 2025, 12:23:33 AM »
So my cousin who has a lupus sarcoidosis real bad, added me to a support group. And she gave me like a Costco sized bottle of prednisone. But I was trying not to do anything without a doctor telling me too. I was just dying so I started taking it yesterday in the day and what a huge difference. I’ll tell my doctor on the seventh that I’ve been taking it. Gotta be honest. But I go out and walked today. No more fallen in busting my head up and getting out of bed. I’ve learned a lot. It’ll go into remission. I will be OK. I still want to cut my legs off even though I can’t feel them. I can’t feel my mouth but big progress with the breathing. Medical professionals don’t really know much about it.

Any progress is good progress!
"no not never ... you should to"

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #475 on: April 26, 2025, 12:36:27 AM »
Expand Quote
So my cousin who has a lupus sarcoidosis real bad, added me to a support group. And she gave me like a Costco sized bottle of prednisone. But I was trying not to do anything without a doctor telling me too. I was just dying so I started taking it yesterday in the day and what a huge difference. I’ll tell my doctor on the seventh that I’ve been taking it. Gotta be honest. But I go out and walked today. No more fallen in busting my head up and getting out of bed. I’ve learned a lot. It’ll go into remission. I will be OK. I still want to cut my legs off even though I can’t feel them. I can’t feel my mouth but big progress with the breathing. Medical professionals don’t really know much about it.
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Any progress is good progress!

Thanks no one. Sorry, couldn’t resist. But I’m serious, thank you.  I’ve spent so much time in the hospital the past 2 months.  To be clean coming on a decade and my body just decides to start destroying itself.   My blood works looking better. I just don’t feel better at all baby steps.. My oldest friend just watches comedy with me and we laugh. It helps.
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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #476 on: May 16, 2025, 02:20:12 PM »
F my life. I just got out of the hospital, and my neighbor called in 9 people to get my yard sorted, it’s been raining so much and flooding still.  Anyways new neighbor on the other side freaked out about weadc whaker song and the 4 cops came.  The stress makes my sarcoidosis flare up immediately.  I’ve never had such a shity neighbor.  They won’t even talk to me when I try to be friendly
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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #477 on: May 29, 2025, 09:17:48 AM »
My new Dr of 4 weeks, I meet her every Wednesday.  I came home yesterday from our appointment and was greeted with an ambulance. She called 911 on me.  But I ekg and everything was good.  So embarrassing
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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #478 on: June 15, 2025, 04:20:50 PM »
Today is my 12th day in the hospital. I took my first ever ambulance ride. I was driving myself to the hospital I was on my porch leaving and I just crumbled. I asked for help for 25 minutes and I’m just finally called the ambulance. Every single organ system was shutting down. I lost consciousness two days. And I woke up and I couldn’t see. I gave me a bunch of vitamins and anabiotic’s. My vitamins were seriously out of whack. So tomorrow we get to look for beds and assisted living so I can learn how to walk again. I thought I was gonna die
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botefdunn

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Re: The WELLNESS OUTREACH & SUPPORT Thread
« Reply #479 on: June 16, 2025, 09:15:28 PM »
ook my first ever ambulance ride. I was driving myself to the hospital I was on my porch leaving and I just crumbled. I asked for help for 25 minutes and I’m just finally called the ambulance. Every single organ system was shutting down. I lost consciousness two days. And I woke up and I couldn’t see. I gave me a bunch of vitamins and anabiotic’s. My vitamins were seriously out of whack.
Today is my 12th day in the hospital. I tSo tomorrow we get to look for beds and assisted living so I can learn how to walk again. I thought I was gonna die

Glad you didn't. Never been in your shoes, but I hope you feel a bit safer and cared for in the hospital.